Month: May 2020

What is it like to have Ehlers-Danlos syndrome?

An infographic describing the symptoms of Ehlers-Danlos syndrome including memory loss, confusion, poor concentration, anxiety, depression, lightheaded, dizzy, shoulder pain or dislocation, radiating or shooting chest pain, irritable bowel syndrome, nausea, upset stomach, diarrhea/constipation, urination problems, menstrual/groin pain, restless leg syndrome, walking-on-glass pain, flu-like/cold symptoms, night sweats, sleep disorders, fatigue, weakness, headaches/migraines, vision problems, jaw pain and dysfunction, vestibular complaints, myofascial pain, spinal burning, muscle spasms, twitching, mitral valve prolapse, hypotension, muscle/joint pain, stiffness, respiratory muscle motility dysfunction, grinding hip pain, numbness and tingling especially in extremities, nondermatomal parasthesias, "allergic" symptoms, chemical sensitivity and skin complaints, weight fluctuations

It’s May, and May is Ehlers-Danlos syndrome (EDS) awareness month! Brief rundown: EDS is a genetic defect of collagen production. Collagen is everywhere in the body, so having defective collagen can produce a whole bunch of problems. You may have seen its prevalence estimated at 1 in 5000 people. Don’t be misled! The actual prevalence […]