Tag: ehlers-danlos syndrome

Gendering health anxiety: why is it “weak” to fear sickness, but “brave” to fear treating it?

A cartoon of a scared woman with light skin and dark hair wearing a surgical mask and looking worriedly at the large coronaviruses in her periphery.

Here’s a potential research question I’ve had all day. Is it possible that the stigma surrounding health anxiety exists because we associate health anxiety with being feminine? We know, based on the data that we have about health anxiety that it’s common, with conservative estimates putting it at 4-5% of the population (it may perhaps […]

Ehlers-Danlos syndrome didn’t kill Sarah Grossman. The police did

Sarah Grossman is a woman with long, braided, brown hair; light skin; and glasses, and she's holding a yellow coffee cup standing out by some leaves.

If you’re just joining me for the first time: hi, my name is Erica! I have the same disorder that Sarah Grossman had: Ehlers-Danlos syndrome (EDS), which is a heritable connective tissue disorder (HCTD). Please wear your mask! You never know who’s got “pre-existing conditions”. You’d probably feel really dumb and ashamed if you found […]

What is it like to have Ehlers-Danlos syndrome?

An infographic describing the symptoms of Ehlers-Danlos syndrome including memory loss, confusion, poor concentration, anxiety, depression, lightheaded, dizzy, shoulder pain or dislocation, radiating or shooting chest pain, irritable bowel syndrome, nausea, upset stomach, diarrhea/constipation, urination problems, menstrual/groin pain, restless leg syndrome, walking-on-glass pain, flu-like/cold symptoms, night sweats, sleep disorders, fatigue, weakness, headaches/migraines, vision problems, jaw pain and dysfunction, vestibular complaints, myofascial pain, spinal burning, muscle spasms, twitching, mitral valve prolapse, hypotension, muscle/joint pain, stiffness, respiratory muscle motility dysfunction, grinding hip pain, numbness and tingling especially in extremities, nondermatomal parasthesias, "allergic" symptoms, chemical sensitivity and skin complaints, weight fluctuations

It’s May, and May is Ehlers-Danlos syndrome (EDS) awareness month! Brief rundown: EDS is a genetic defect of collagen production. Collagen is everywhere in the body, so having defective collagen can produce a whole bunch of problems. You may have seen its prevalence estimated at 1 in 5000 people. Don’t be misled! The actual prevalence […]